Retina UK
Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.
We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Helpline: 0300 111 4000 – Our helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.
Talk and Support – For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.
To find out more about the telephone, online, and face-to-face services offered by Retina UK please visit our website: www.RetinaUK.org.uk.
Who to contact
- Contact Name
- Denise Rawden
- Contact Position
- Information and Support Manager
- Telephone
- 07429 689804
- services@retinauk.org.uk
- Website
- Retina UK Website
Where to go
- Name
- Retina UK
- Address
-
Wharf House
Stratford Road
Buckingham
- Postcode
- MK18 1TD
Other Details
Availability
- Referral required
- No
- Referral Details
We are the only UK charity dedicated solely to working for people affected by inherited sight loss.
- Other notes
We are the only UK charity dedicated solely to working for people affected by inherited sight loss.
Our vision is a world where everyone with inherited sight loss is able to live a fulfilling life.
By stimulating and funding medical research, we increase the understanding of these conditions and accelerate the search for treatments for the future.
The information and support we provide helps people lead better lives, today. We ensure no-one with inherited sight loss need feel alone.
We are in the unique position of being small enough to listen and respond to our community’s needs, but with a big enough reputation to make our voice heard by those who matter.
We are proud of the difference we make, but we want to do so much more; with our passion and hard work, and the ongoing support of our amazing community, we will make our vision a reality.